Reports
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The quality of patient engagement and involvement in primary care
Research project commissioned by the King's Fund Inquiry Panel into patient engagement and involvement in general practitioner services.
Patient choice: how patients choose and how providers respond
Study by the King's Fund, Picker Institute Europe, RAND Europe and Office of Health Economics, conducted in four areas in England examining patient choice at the point of referral from primary care to hospital care.
An evaluation of the National Cancer Survivorship Initiative test community projects: report of the baseline patient experience survey
This report presents the findings of a patient experience survey conducted as part of the evaluation of the National Cancer Survivorship Initiative test community projects.
View also the validation analysis of the survey questionnaire.
Choice at the point of referral: early results of a patient survey
Findings of an outpatients survey conducted on behalf of the Kings Fund examining patients' experience of referral and choosing a hospital for treatment.
Patient and public engagement - the early impact of World Class Commissioning
Report of a survey of primary care trusts to understand the impact of the World Class Commissioning framework on patient and public engagement strategies and approaches.
North London Cancer Network Patient Survey 2008
Executive summary of findings of a study commissioned by the North London Cancer Network. The postal survey of cancer patients gained feedback on the quality of service provided between October 2008 and January 2009.
Information Accreditation Scheme Testing Phase: assessing the impact
A study for the Department of Health to assess any effects that a new health and social care Information Accreditation Scheme might have on information production processes and the quality of information materials.
Not NICE: can PCTs engage patients and the public in commissioning new health technologies?
Report of a small scale research study, including a literature view of the effectiveness of deliberative processes in helping to decide health priorities, and a study of the extent to which PCTs are engaging local people in this.
On our own terms: the challenge of assessing dignity in care
The key findings of a study commissioned by Help the Aged to develop indicators for determining the extent to which older users of health and social care services feel their dignity is maintained.
Where are the patients in decision-making about their own care?
A policy briefing on patient engagement written for the WHO European Ministerial Conference on Health Systems, 25–27 June 2008, Tallinn, Estonia. The briefing is one of a new series written to meet the needs of policy-makers and health system managers with the aim to develop key messages to support evidence-informed policymaking.
Women's views about safety in maternity care
Findings of a study which aimed to obtain the views of women with recent birth experiences about the safety of the maternity care they received, to inform the King's Fund inquiry into the safety of maternity services in England.
Patient preferences for alternative surgical techniques for abdominal aortic aneurysm repair: report of a patient survey
Findings of a survey of patients with abdominal aortic aneurysm (AAA), examining the factors influencing their choice of treatment and the role of an information pack on their decision-making.
See also the questionnaire and information pack relating to the project.
Patient-centred Professionalism: Defining the public's expectations of Doctors
Final report of the Patient-Centred Professionalism programme designed to improve patient care by enhancing understanding of the patient's perspective on doctors and medical care; to ensure that medical practice standards, education and regulation are truly patient-centred.
Cancer follow up care: the views of patients and carers expressed in a range of focus groups
A study commissioned by NHS Improvement and Macmillan Cancer Support to examine patient and carer views of health and social services following treatment for cancer.
How patients might use Good Medical Practice
The findings of research from six focus groups exploring the views of members of the public on the value to patients of the revised version of Good Medical Practice, the General Medical Council's ethical guidance to doctors on the standards of behaviour expected of them.
Developing the National Service Framework - Exploring the experience of seldom heard people affected by Chronic Obstructive Pulmonary Disease
Chronic Obstructive Pulmonary Disease (COPD) is an umbrella term covering a range of long term conditions concerned with lung disease. This report presents the findings of research carried out with patients and their carers as part of the development of the National Service Framework (NSF).
An independent NHS: what's in it for patients and citizens?
This paper examines the role of patient/citizen engagement in relation to greater NHS independence. The paper argues a case for greater NHS independence but only in a way that puts the interests of patients/citizens at its core; examines trends in public service management comparing the BBC to the NHS; and finally builds on the BBC Public Value model to develop some key criteria.
Exploring attitudes towards and experience of the NHS in the North West
NHS North West commissioned the Picker Institute to conduct twelve focus groups with patients, staff and the public from throughout the region to inform their deliberations in response to 'Our NHS our future' (the 'Darzi' review). This report presents the findings.
Designing GP buildings: staff and patient priorities for the design of community healthcare facilities in Lambeth
A study examining patient and staff attitudes in general practices in Lambeth to the built environment in community healthcare facilities.
Is the NHS becoming more patient-centred? Trends from the national surveys of NHS patients in England 2002-07
This report examines the results of 26 national patient surveys, carried out under the NHS patient survey programme in England. With detailed reports on the experience of care of nearly one and a half million NHS patients, it is now possible to compare results year-on-year since 2002, enabling examination of progress towards a more patient-centred service.
Evidence on the effectiveness of strategies to improve patients’ experience of cancer care
Report outlining the evidence base for key recommendations made by the Patient Experience Working Group for the Cancer Reform Strategy. Highlights: information; choice; support of self-care and self-management; the need for systematic feedback; and public involvement in service development.
Information for people living with conditions that affect their appearance. Report I The views and experiences of patients and the health professionals involved in their care
This report describes the findings of a three year qualitative study and review of previous research investigating the information needs of patients with conditions that affect their appearance.
Information for people living with conditions that affect their appearance. Report II Review and assessment of existing information
The second part of a three-part programme of research on the information needs of people living with conditions that affect their appearance. This part of the report covers the information available and the views of people who use it.
Information for people living with conditions that affect their appearance. Report III A survey of people with head & neck cancer, burns, psoriasis and parents of children with a craniofacial condition
Part three of a three part research programme that investigated the information needs and experiences of patients with conditions that cause disfigurement and visible loss of function. The part of the report aimed to capture the similarities and the differences of views and experiences, providing a voice for information needs.
Information for people living with conditions that affect their appearance. Summary and recommendations
The final report in a series to investigate the information needs of patients with conditions that affect appearance. This paper provides an overview of the research programme, drawing out common themes, summarizing key findings and presenting recommendations.
Patient and public involvement in PCT commissioning
A report presenting the findings of a survey of PCTs, carried out to determine their readiness to engage patients and the public in healthcare commissioning. Patient and public involvement is a well-established practice in most of the PCTs that responded, however, the report also highlights difficulties such as a widespread deficit in skills, experience and confidence.
Accessing information about health and social care services
The second of two research studies on patients' information produced for the Department of Health by the Picker Institute. This new study examines how patients, service users and carers currently find out about locally available services and how to access them.
A hidden problem: pain in older people
The findings of qualitative research aimed at improving the understanding of how chronic pain is perceived and responded to in care homes in England, by exploring the views and experiences of residents from nursing homes in different parts of the country.
A secondary analysis of primary care survey data to explore differences in response by ethnicity
A report commissioned by the National Association for Patient Participation to perform secondary analysis on data collected for the Healthcare Commission's Primary Care patient's survey, with the aim of examining any significant differences in the experience of patients from different ethnic groups.
Assessing the quality of information to support people in making decisions about their health and healthcare
This report presents the findings of a study investigating the current quality of health information and assessing the value of accrediting information providers. The consisted of four strands including a review of research evidence on patients’ information needs; a survey of health information specialists; a detailed assessment of 40 information materials; and a telephone survey of information providers.
Implementing patient decision aids in urology
This report describes and evaluates the implementation of an innovative programme to help patients diagnosed with either early-stage localised prostate cancer or Benign Prostatic Hyperplasia (BPH) to reach 'good quality' decisions about their treatment in partnership with healthcare professionals.
What do you think of your doctor? A review of questionnaires for gathering patients' feedback on their doctor
A review of a selection of questionnaires designed to gather feedback from patients on individual doctors. It examines how they were developed; their wording; their coverage of key content domains (e.g. interpersonal skills, communication, and patient engagement and enablement); and the thoroughness with which they have been tested for validity and reliability.
Patient-focused interventions - a review of the evidence
The Quality Enhancing Interventions component of the QQUIP initiative provides a series of evidence-based reviews of the effectiveness of interventions designed to improve the quality of healthcare. This document contains the complete review of patient-focused interventions looking at health literacy, clinical decision making, self-care, patient safety, access to health advice, care experience and service development.
Education for partnership
Evidence shows that people who are actively involved in protecting their health and managing their healthcare have better health outcomes. This report examines the extent to which doctors are being trained to work in partnership with patients and explored gaps in both evidence and practice.
What do patients and relatives see as key competencies for intensive care doctors?
Report highlighting findings of an exploratory survey aimed at identifying the preferences of patients and their families in intensive care units. Findings confirm the importance of medical skills and the experience of the doctors.
Engaging patients in their healthcare - how is the UK doing relative to other countries?
An analysis of data, from the Commonwealth Fund's international health policy surveys carried out in 2004 and 2005, to examine the extent to which health professionals support patients to play an active role in their healthcare.
Setting Standards: the views of members of the public and doctors on the standards of care and practice they expect of doctors
A report presenting the findings of research carried out to assist the Standards and Ethics Committee of the GMC in its review of Good Medical Practice by obtaining the views of patients and the public as well as the profession itself.
Trends in patients' experience of the NHS
An analysis of the patient survey programme, designed to provide "systematic evidence to enable the health service to measure itself against the aspirations and experience of its users, to compare performance across the country, and to look at trends over time", since its inception in 1998.
A review of professional codes and standards for doctors in the UK, USA and Canada
A review of Patient-Centred Professionalism, an international research and development programme which aims to bring together evidence about the experiences and expectations of health care service users in order to help improve patient care by enhancing doctors' understanding of the patient's perspective, help the medical profession shape its roles and responsibilities in delivering patient-centred care.
Patient-centred medical professionalism: towards an agenda for research and action
A report outlining issues concerned with patient-centredness in relation to the way doctors practise, what they believe or value and how they are organised.
How engaged are people in their health care?
This report presents the findings of 3000 telephone interviews investigating experience and management of chronic illness. Part of the questionnaire was based around the Patient Activation Measure (PAM); a tool designed to assess people's knowledge, confidence and skills for self-management.
Implementing patient decision aids in urology - final report
Final report from the Action on Urology programme regarding the pilot project designed to implement decision aids into routine practice in the NHS.
Patients' experience of choosing where to undergo surgical treatment. Evaluation of London Patient Choice Scheme
An evaluation of the London Patient Choice scheme; whereby patients facing a wait of more than eight months for elective surgery were offered the option of going to an alternative London provider that could offer faster treatment. This report focuses on patient experience.
Is the NHS getting better or worse?
This report draws together key findings from 15 national (England only) patient surveys carried out between 1998 and 2005. The individual surveys were commissioned and published by the Department of Health, the Commission for Health Improvement, the Healthcare Commission and the National Audit Office.
Patients’ experience of CHD choice
Report commissioned by the Department of Health examining the experience of patients in the Coronary Heart Disease (CHD) Choice scheme.
Patient and public perspectives on healthcare performance: report prepared for the Commission for Health Improvement
A report prepared for the Commission for Health Improvement on patient and public perspectives on health care performance.
National Surveys of NHS Patients Coronary Heart Disease 1999 National Report Summary of Key Findings
Survey of Coronary Heart Disease (CHD) patients. The purpose of the survey was to assess the quality of NHS patient care as seen by both in-patients and day patients, who had been treated for Coronary Heart Disease. Fieldwork took place during 1999.
National surveys of NHS patients General practice 1998 - summary of key findings
Key findings of the first National Survey of NHS Patients - the 1998 General Practice Survey. The survey covered a wide range of issues including access and waiting times, communication, patients' views of GPs' knowledge, out-of-hours care, competence and courtesy, and availability of other surgery staff and services.
National surveys of NHS patients General Practice 1998 - main report
Report following the 1998 General Practice Survey designed to help assess the quality of General Practice through the patient's eyes. The survey covered a wide range of issues including access and waiting times, communication, patients' views of GPs' knowledge, out-of-hours care, competence and courtesy, and availability of other surgery staff and services.
